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Workshop
Help I'm new to consumer involvement in research
Gillian Fletcher, Freelance Training Consultant
Neil Gillespie, Leukemia Care
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Paper
Evaluating stakeholder engagement in change: collaborative organisational research in a mental health NHS Trust
Steve Gillard, Senior Research Fellow, St George's, University of London
Kath Lovell, Researcher by Experience, St George's, University of London
Katie Turner, Researcher by Experience, St George's, University of London
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Paper
A view from the peer
Alex Christopoulos, Senior Research Executive, Ipsos MORI
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Paper
Systematic literature reviews: a new model from service users
Pete Fleischmann, Principal Advisor in Participation, Social Care Institute for Excellence
Diana Rose, Co-director of the Service User Research Enterprise (SURE), Institute of Psychiatry
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Paper
Research partnerships in a project assessing the role of treatments used in women with cervical cancer
Claire Vale, Researcher, Meta-analysis Group, Medical Research Council Clinical Trials Unit
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Paper
The Warwick Diabetes Care Research User Group Evidence for the effect of consumer involvement in health research
Hilary Hearnshaw, Director of Research, Warwick Diabetes Care
Geoff Aitchison, Lay Secretary, Warwick Diabetes Care Research User Group
Antje Lindenmeyer, Research Fellow, Warwick Medical School
Jackie Sturt, Assistant Director of Research, Warwick Diabetes Care
Ralph Ormerod, Lay Chair, Warwick Diabetes Care Research User Group
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Paper
Involving people with stroke in stroke research
Nina Fudge, Research Associate, King's College London
Christopher McKevitt, Research Associate, King's College London Stroke Research Patients and Family Group
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Paper
How can Social Care Online and the new National Social Care Research Register contribute to user and carer led research?
Salina Bates, Information Manager, Social Care Institute for Excellence
Sue Jardine, Information Manager, Social Care Institute for Excellence
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Paper
NHS guidance: patient/carer involvement in guideline development
Pamela Dix, Executive Director, Disaster Action
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Workshop
Learning from the patient's voice: involving patients as co-researchers with health professionals
Elizabeth Boath, Reader in Mental Health, Staffordshire University
Sara Buckley, Research Officer, Staffordshire University
Joan Monkman, Consumer Researcher, Staffordshire University
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Workshop
The Research User Group in action
Geoff Aitchison, Honorary Secretary, Warwick Diabetes Care Research User Group.
Ralph Ormerod, Honorary Chair, Warwick Diabetes Care Research User Group
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Paper
Detention and compulsion in mental health: a collaborative study
Rajinder Sidhu, Researcher, SURE, Institute of Psychiatry
Diana Rose, Co-Director, SURE, Institute of Psychiatry
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Paper
The user's voice - experiences of feeling or not feeling respected during psychiatric hospitalisation: inpatient views
Audrey Gachen, Researcher, MIND, Kingston
Patti Wallace, Principal Lecturer in Counselling and Psychotherapy, Roehampton University
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Paper
Why tell us?
Joan Brogden, HELLO Project, Age Concern Wigan and University of Salford
Elaine Jones, HELLO Project, Age Concern Wigan and University of Salford
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Paper
Older People in Research: a case study from the London Primary Care Studies Programme
Vari Drennan, Director of the Primary Care Nursing Research Unit, UCL & KCL
Sybil Myerson, Honorary Research Fellow, Dept. of Primary Care & Populations Sciences, Royal Free & University College London Medical School
The Identifying Unmet Needs (Spice) Research Team
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Paper
Pitfalls and peaks: the formation of a Consumer Research Panel (CRP)
Dorothy Fagge, Chairman, Consumer Research Panel, Humber & Yorkshire Coast Cancer Research Network
Jane Ash, Research Assistant, Consumer Research Panel, Humber & Yorkshire Coast Cancer Research Network
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Paper
Sharing successes: an encouraging process
Sara Morris, R&D Manager, User Involvement Health R&D North West
Sue Hinder, Lay Chair, North West Users Research Advisory Group, Health R&D North West
David Britt, Lay member, North West Users Research Advisory Group, Health R&D North West
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Paper
Challenges in maximising recruitment to a randomised controlled trial through working with a service user group
Gill Pearl, Health Foundation Research Fellow, University of Manchester
Alys Young, University of Manchester
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Paper
When should we help with recruitment to research? Developing guidance for voluntary health organisations
Kristina Staley, Co-Director, TwoCan Associates
Bec Hanley, Co-Director, TwoCan Associates
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Paper
The role of patients and carers in device design: the Healthcare Technology Cooperative (HTC) model
Adele Long, Director BioMed HTC, Bristol Urological Institute
Debra Evans, Information Co-ordinator, PromoCon
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Paper
Involving service users in researching an acute physical inpatient occupational therapy service
Cathy Roberton, Senior Occupational Therapist, Wirral Hospital NHS Trust
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Paper
Public participation in action
Maureen Jerram, Senior Quality and Performance Monitoring Officer, Northamptonshire County Council,
Service users and carers will also be involved in this presentation.
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Paper
Our lives your learning
Amanda Thorpe, Head of Social Work, University of Bedfordshire
Marisa Forbes, Manager, Centre for the Development of Social Care Practice, University of Bedfordshire
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Paper
The PRIME Project: The challenges of developing a user-focused research agenda for ME/CFS research
Sophie Staniszewska, Senior Research Fellow, RCN Institute
Douglas Badenoch, Director, Minervation
Sally Crowe, Director, Crowe Associates
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Paper
Service user involvement in research: panacea or pretence
Hugh McLaughlin, Director Social Work and Social Policy, University of Salford
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Abstract
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Workshop
Training for involvement in research
Barrie Holt, REACT Project Coordinator, South West Yorkshire Mental Health NHS Trust
Virginia Minogue, Head of West Yorkshire Mental Health Research and Development Consortium
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Abstract
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Workshop
Would you like to learn more about, inclusive participatory, user led, research methods?
Jane Viner, Mental Health Empowerment Co-ordinator, RENEW (Research Evaluation Network Educating Wolverhampton).
Donna Ryan, RENEW (Research Evaluation Network Educating Wolverhampton).
Steve Garlick, RENEW (Research Evaluation Network Educating Wolverhampton).
Janet Rhodes, RENEW (Research Evaluation Network Educating Wolverhampton).
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Workshop
The road to collaboration
Louise Bryant, Research Fellow. Academic Unit of Psychiatry and Behavioural Sciences, University of Leeds
Judy Beckett, Survivor Researcher, Academic Unit of Psychiatry and Behavioural Sciences, University of Leeds
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Paper
Stroke services need to take account of cultural/religious issues to be equitable
Malcolm Auton, Research Fellow, University of Central Lancashire
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Paper
Collective data analysis in palliative care research: Process and outcomes
Phil Cotterell, Research Fellow, Worthing and Southlands Hospitals NHS Trust
Di Cowdrey, Members of the Service User Research Advisory Group
Mandy Paine, Members of the Service User Research Advisory Group
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Paper
For the people, by the people, with the people
Anne McKenzie, Consumer Research Liaison Officer, The University of Western Australia and the Telethon Institute for Child Health Research
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Abstract
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Paper
Carers involved in research
Shona Haining, Research and Development Facilitator, Northumberland Care Trust
Cari Hook, Carers
Angela De Travernment, Carers
Bob Mortimer, Carers
Bill Dack, Carers
Michele O'Brien, Carers Officer, Northumberland Care Trust
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Paper
Risks and benefits of medicines: Who do you trust?
John Watkins, Communications Manager, Medicines and Healthcare products Regulatory Agency (MHRA)
Michele Corrado, Michele Corrado
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Paper
The National Prevention Research Initiative - a study of successful lay involvement in strategic funding of research
Roger Wilson, Chair, NCRI Consumer Liaison Group
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Abstract
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Paper
Research ethics: what do you think?
Rachael Carrick, Trainee Clinical Psychologist, University of Exeter
L T Merwood, Service User Representative
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Abstract
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Paper
Service user research and why it hurts
Patsy Staddon, Postgraduate Researcher, University of Plymouth
Women's Independent Alcohol Support
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Abstract
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Paper
Partnership research: researchers with and without learning difficulties working together
Kathy Boxall, Lecturer, Sheffield University
Anita Wheldon, Self Advocate Forum, Wigan
Angie Seddon, Development Worker, Wigan MBC
Bridget Whittell, Performance and Planning Officer, Wigan MBC
John Cookney, Manchester Learning Disability Partnership
Melanie Chapman, Research Associate, Manchester Learning Disability Partnership
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Paper
People with learning disabilities' and carers' research questions for investigating health risks
Anita Young, Research Fellow/Therapies Manager, The Robert Gordon University
Rosemary Chesson, Head, Health Services Research Group, The Robert Gordon University
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Paper
The Research Assessment Exercise (RAE) and public involvement in research: can the tensions be reconciled?
Karen Postle, Lecturer in Social Work, University of East Anglia
Peter Beresford, Director of Centre for Citizen Participation, Brunel University and Chair of Shaping Our Lives
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Paper
The Comensus Project
Lisa Malihi-Shoja, Comensus Project Co-ordinator, University of Central Lancashire
John Coxhead, Service User Representative
Nat Solanki, Service User Representative
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