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Developing mobile applications for and with young people with long-term conditions learning to share their health-care with professionals: A young person and family-led approach
Abstract: Although young people are frequent users of mobile devices in day-to-day life, there is little reliable research that actually involves young people with long-term conditions as partners in the development and testing of mobile technology applications to support their health needs. However, the transition from child to adult health services means that young people …
Developing patient and public involvement (PPI) at the Bristol Nutrition Biomedical Research Unit: The challenges of tailoring PPI
Abstract: The National Institute for Health Research (NIHR) Biomedical Research Unit in Nutrition, Diet and Lifestyle at the University of Bristol and the University Hospitals Bristol NHS Foundation Trust was launched in April 2012 and specialises in a diverse range of research areas including: nutrition, physical activity and lifestyle in men with prostate cancer; optimising …
Research agenda setting from the perspective of a highly diverse patient population with visual impairments or ophthalmological diseases
Abstract: Background: Patient involvement in research agenda setting has been studied in various initiatives. However, little insight is available on effective involvement strategies for both vulnerable, and for highly diverse and divided patient populations. Objective: To develop a research agenda for people with visual impairments or ophthalmological diseases, taking into account their specific needs for …
Working together to deliver training on patient and public involvement in research
Abstract: For organisations that want to involve patients and the public in research, it can be difficult to find the time and the resources to provide training and support, particularly given the recent uncertain economic climate. Since 2009, Asthma UK and Alzheimer’s Society have taken a collaborative approach to delivering training to their supporters, focusing …