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The launch of the NIHR Clinical Research Network: West Midlands ‘Patient, Carer and Public Involvement and Engagement’ (PCPIE) strategy
Abstract: The National Institute for Health Research (NIHR) Clinical Research Network: West Midlands ‘Patient, Carer and Public Involvement and Engagement’ (PCPIE) in research working group launched their PCPIE strategy on 6 March 2014. Development of this strategy required input from key regional patient and public involvement (PPI) stakeholders. Lay people, patients, carers, academic professionals and …
Evaluating clinical genetics services and the involvement of service users
Unlike other areas of medicine, many users of clinical genetics services (CGS) are healthy relatives of affected people and the ‘treatment’ offered is information or surveillance. This makes the evaluation of CGS difficult. Our research aims to develop methods to evaluate the patient benefits from a CGS. Consumers were involved in: (a) focus groups to …