NIHR PPI Newsletter July 2018

INVOLVE – NIHR Newsletter July 2018 – Focus on I Am Research/NHS 70

In this issue:

  • #IamResearch is a conversation opener for public involvement
  • Simon Denegri recognised in Queens’ Birthday Honours
  • Celebrate NHS 70th Birthday
  • The Great Untold Story of Research
  • The public as our partners’ highlights report
  • Patient Experience Survey results
  • Co-Producing research: How we do it? Event, London



What you need to know about payment

An introductory guide for members of the public who are considering active involvement in NHS, public health or social care research.

20 pages

Please note that benefits guidance and tax legislation been subject to considerable change/reinterpretation since 2019. Any INVOLVE documents referring to the payment of involvement fees may now be out of date and are pending a review during 2020. INVOLVE’s guidance should not be substituted for professional advice, and INVOLVE accepts no liability for decisions or actions taken as a result of its guidance. You are always recommended to take your own tax, finance or legal advice.




Notes of INVOLVE Executive Group Meeting September 2016




Autumn 2016

In this issue:
• The Sharebank – working together to support public involvement in research
• INVOLVE Coordinating Centre News
• Interesting articles
• A Study SHARED
• Involving parents and adolescents in research: the Kids FIRST study
• Patient Led Research Hub – a New Initiative to Foster Patient Led Research
• Noticeboard

 




Spring 2016

In this issue:

  • Introduction from Zoe Gray, Dirtector of INVOLVE
  • INVOLVE Coordinating Centre news
  • Benefits Advice Service
  • Understanding the research patient experience: results of a participant experience ‘OK to ask’ post card questionnaire undertaken by UK Clinical Research Facilities
  • Helping researchers to produce better patient information sheets
  • Noticeboard



Public involvement in research and research ethics committee review

This statement has been developed by the Health Research Authority (HRA) and INVOLVE for researchers who will be submitting applications for ethical review to provide clarity and guidance on public involvement in research and the requirements of Research Ethics Committee (REC) review.




Impact of public involvement on the ethical aspects of research




Reward and recognition for children and young people involved in research – things to consider

Children and young people involved in research should receive appropriate reward and recognition for their contributions. This demonstrates the value that you place on their time, commitment and expertise when involved in your research activities. Many of the things to consider when involving adults also apply when involving children and young people; however there are other specific issues that you should think about when planning involvement that includes young people.