Co-production in action number two

This booklet is the second in a series of publications highlighting co-production in action. It builds on our earlier work, Guidance on co-producing a research project by showing how the key principles and features identified are expressed in practice.

40 pages




Co-production in action number one

This booklet is the first in a series of publications highlighting co-production in action. It builds on our earlier work, Guidance on co-producing a research project by showing how the key principles and features identified are expressed in practice.

28 pages




Starting Out

The Starting Out booklet is intended to give guidance to members of the public new to involvement in research. It was developed as part of the INVOLVE Learning and Development project.

 

18 pages




IN Bulletin 8 – Young peoples’ involvement in paediatric dentistry

Welcome to theĀ eighth issueĀ of our IN: Bulletin.

This bulletin focuses on Young peoples’ involvement in paediatric dentistry. YPAGne (Young Person’s Advisory Group North England) member Ollie Waterhouse and Greig Taylor NIHR Academic Clinical Fellowship, Specialty training Registrar in Paediatric Dentistry explain.




IN Bulletin 7 – Shared Research

Welcome to theĀ seventh issueĀ of our IN: Bulletin.

This bulletin focuses on shared research where those who have been supported by a social care scheme interview others. Shared Lives Peer Researchers Rachel Turner and Paul Vickery and Principal Investigator Nadia Brookes explain.




Public Co-Applicants in Research ā€“ guidance on roles and responsibilities

This guidance is intended to help:

  • Researchers wanting to include a public co-applicant in a study
  • Public contributors wanting to become a co-applicant
  • Research staff who coordinate public involvement activities or advise on funding applications
  • Those working in or with research organisations to review or process research applications.

This guidance was developed jointly by the NHS R&D Forum, the Health Research Authority and INVOLVE.

January 2019

Pages: 24




Sophie Ainsworth

I stumbled into the world of research and healthcare, following a diagnosis of Lupus in 2014, when I was 14 years old. Since then I have become a passionate advocate for patient voice in healthcare, particularly for children and young people, who are often overlooked. Following my diagnosis, I became a participant in research studies, both as a patient and being on advisory groups. I have sat on the advisory group for the TRECA Study, which develops multimedia interventions for patient information sheets. I have also worked closely with the Alder Hey Clinical Research Facility and Lupus UK on a variety of projects and have been an NIHRĀ Patient Research Ambassador for two years.

Most of my work nowadays focuses on RAiISE, a charity I founded two years ago which stands for Raising Awareness of invisible Illnesses in Schools and Education. It is dedicated to supporting students who are living with ‘invisible’ illnesses to ensure they are given the support they need in school by equipping teachers with resources and information to do so.




IN Bulletin 6 – Involving young people in research

Welcome to theĀ sixth issueĀ of our IN: Bulletin.

This bulletin focuses on young people in research. Sam Goold, INVOLVEā€™s Public Involvement Officer, meets a researcher and young person from a healthy eating research project.