Redefining policy and interventions from the point of view of the elderly patient with cancer

2014 Conference

Abstract: Policymakers want their policy to be effective. An effective policy is one written with the target group, and not about the target group. In the case of elderly cancer patients, a three-fold vulnerability (due to ageing, due to cancer and due to comorbidity) leads to their underrepresentation in research, which in turn translates into few policies that specifically address this group. Current health policy aims to reduce costs, support self-management and encourage active patient role, but how does this fit with what patients need, prefer and are capable of? And, are the conditions in place to make all this possible? This study focuses on the needs of elderly cancer patients and what these policies mean to them.

A qualitative research study is conducted to gain insight in the experiences of elderly cancer patients with healthcare and their daily life. These insights are obtained by means of 30 semi-structured interviews with elderly cancer patients and 20 semistructured interviews with various stakeholders (among others medical professionals, policymakers and caregivers) for a broader perspective. Data collection is still in progress.

Preliminary analysis will focus on how elderly cancer patients attribute meaning and significance to their role in health care and how they cope with illness in daily life. It will explain what is important to these patients, but also why it is important. This knowledge will be used to make recommendations for the development of policies and interventions that fit the needs and daily life, and thereby are more effective.

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