This is INVOLVE’s submission to the Department of Work and Pensions Select Committee inquiry on Universal Credit.

No. of pages: 4

In March 2010 the Academy of Medical Sciences (AMS) was asked by the Department of Health to conduct an independent review of the regulation and governance of medical research.

In the course of its inquiry the panel invited the Association of Medical Research Charities (AMRC) and INVOLVE to hold a workshop which would provide an insight into patient perspectives on the conduct of research and associated regulatory issues. It was agreed that the conclusions of the workshop would be fed into the review and that AMRC and INVOLVE would separately produce an independent report of the event. The workshop was held on Tuesday 2 November 2010.

No. of pages: 13

Authors: Hilary Blackburn, Bec Hanley and Kristina Staley from TwoCan Associates

This report provides real-life examples of how service users have been involved in social care research.

No. of pages: 40

Author: Alison Faulkner

Summary of the full report of the Changing our worlds publication. The summary outlines the common themes, conclusions and key messages from the seven projects which are explored in the full report.

No. of pages: 12

Author: Alison Faulkner

This report is intended to increase the understanding and awareness of user-controlled research through exploring in-depth seven examples of research where service users or disabled people controlled the research process. The report provides a description of the seven examples and a summary of the role and value of the user-controlled research.

A 12-page summary of the report and an easy read version of one the projects – Connect Works – are also available.

No. of pages: 60

Author: Connect in the North

More detailed information about this project is available in the report Changing our worlds: examples of user controlled research in action.

No. of pages: 12

Author: Katherine Cowan, James Lind Alliance

The event brought together representatives from large and small research funding organisations, research commissioners and other groups and individuals with experience of patient and public involvement in research priority setting and commissioning.

The purpose of the meeting was to reflect on progress and to consider the future development of patient and public involvement in research priority setting and commissioning processes.

No. of pages: 30

Authors: Fran Branfield and Peter Beresford

The workshop held in March 2010 was attended by a diverse group of service users interested in health and social care research. The aim was to find out how more people can be actively involved in research, especially groups and people whose views are heard less often in wider society.

This report details the ideas and perspectives from the 11 service user participants, summarises the discussion between the service user participants and INVOLVE and sets out the service user identified recommendations for future work to improve and expand the groups and people getting involved with research.

No. of pages: 8

Authors: Fran Branfield, Peter Beresford

The workshop held in March 2010 was attended by a diverse group of service users interested in health and social care research. The aim was to find out how more people can be actively involved in research, especially groups and people whose views are heard less often in wider society.

This report details the ideas and perspectives from the 11 service user participants, summarises the discussion between the service user participants and INVOLVE and sets out the service user identified recommendations for future work to improve and expand the groups and people getting involved with research.

No. of pages: 46

Author: Bec Hanley, TwoCan Associates

This report stems from a workshop held by INVOLVE in January 2010. It details 12 examples of training and support for public involvement in research and summarises what happened at the workshop.

No. of pages: 63

Author: Kristina Staley, TwoCan Associates

invoNET is a network of people working to build evidence, knowledge and learning about public involvement in NHS, public health and social care research. invoNET workshops offer network members an opportunity to share information on building the knowledge and an evidence base for public involvement in research. The aim of this workshop was to provide an opportunity to network and share information on the impact of public involvement in research.

No. of pages: 19

Author: Lucy Simons

The Research Design Services are funded by the National Institute for Health Research to help NHS researchers and those working with NHS partners to prepare grant applications for applied health or social care research. They do this by providing expert advice and support on research design and methodology.

By compiling this map of their public involvement work, we hope to provide a comprehensive description of how the ten Research Design Services plan to promote and support public involvement in research.

We hope this document will be of interest to the Research Design Services and other organisations concerned with public involvement in research.

No. of pages: 48