Abstract:
Aim: This paper describes how people affected by cancer have influenced the cancer research agenda in the North Trent Cancer Research Network (NTCRN).
Methods used: Researchers used a range of methods to recruit consumers. These included local radio and newspapers, posters and leaflets in law centres, supermarkets, using clinical trial databases and clinicians approaching patients directly. The NTCRN has worked to formalise the process of consumer involvement and incorporate it into the organisational infrastructure. This means that consumers are represented on key committees and have been involved in organising the annual Consumer Involvement Conference.
A Consumer Research Panel has been set up to increase involvement across the NTCRN.
Findings/recommendations: Consumers have identified research topics that have been taken forward. They have become involved in research advisory groups and in analysis and dissemination.
The authors call for opportunities for involvement at all stages of the research process, and for this involvement to be co-ordinated.
External link: The following links will take you to information on this entry on an external website. INVOLVE is not responsible for the content or the reliability of the external websites. Link to PubMed abstract
Related entry: none currently available
Categories: health
Identifying topics, prioritising and commissioning
Managing research
Analysing and interpreting
Writing up and disseminating
impact on funding/commissioning
impact on research
nature and extent of public involvement in research
impact of public involvement
journal article
Date Entered: 2007/02/20
Date Edited: 2012/11/21
Additional Info:
