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Title: Take small steps to go a long way: consumer involvement in research into complementary and alternative therapies.
Author: Paterson, C.
Date Published: 2004
Reference: Complementary Therapies in Nursing & Midwifery, 10, 150-161.
Are service users or carers authors: No/Not Known

Abstract:

Aim: To find out about consumer involvement in complementary medicine research from people with experience in this area.

Method: Literature review, contact with relevant organisations in the UK and interviews with consumers and researchers.
 
Findings/recommendations: The overall level of consumer involvement was low. However several examples were found where consumers had had an impact on:
  • priority setting
  • protocol development
  • recruitment to research
  • tackling ethical problems
  • producing written information for participants.

Researchers gained from the added energy and enthusiasm to the team and from practical and personal support from consumers.

Consumers benefited in the following ways:
  • they were able to turn a bad experience of illness into a positive contribution to the common good
  • new social opportunities
  • knowing that something was being done.
However they also expressed frustration and not being able to influence the medical research establishment and surprise and anxiety about the costs of research.

External link: The following links will take you to information on this entry on an external website. INVOLVE is not responsible for the content or the reliability of the external websites. Link to PubMed abstract

Related entry: Click to view

Categories: health
Identifying topics, prioritising and commissioning
Designing research
impact on research
impact on research ethics
impact on service users involved
impact on researchers
impact of public involvement
journal article
Recruitment

Date Entered: 2007/03/03

Date Edited: 2015/02/19

Additional Info:
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