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Title: Public involvement at the design stage of primary health research: A narrative review of case examples.
Author: Boote, J., Baird, W. & Beecroft, C.
Date Published: 2010
Reference: Health Policy, 95(1), 10-23.
Are service users or carers authors: Yes

Abstract:

This paper reports on a review of published examples of public involvement in research design. The authors discuss the impact of involvement at this stage, the tensions and the barriers and facilitators to involvement.

A literature search identified seven papers that focused exclusively on the research design stage.

The key impacts that were identified included:

  • improving the quality of patient information sheets
  • helping to resolve the ethical dilemmas in clinical trials where informed consent would be difficult or impossible to obtain
  • identifying additional outcome measures in clinical trials
  • ensuring data collection procedures are ethically acceptable
  • making recommendations as to the most appropriate time to approach people to take part in clinical trials and the best time and methods for follow-up.

External link: The following links will take you to information on this entry on an external website. INVOLVE is not responsible for the content or the reliability of the external websites. Link to PubMed abstract

Related entry: none currently available

Categories: health
social care
Designing research
impact on research
impact on research ethics
impact of public involvement
reflecting on public involvement in research
journal article
Recruitment

Date Entered: 2010/09/28

Date Edited: 2012/11/21

Additional Info:
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