Evidence Library

Abstract:

This study reports on an evaluation of the Patient and Public Involvement in Research (PPIRes) project. PPIRes consists of a panel of approximately 50 volunteers that has existed since 2003 and is supported by the Norfolk and Waveney R&D consortium.

The evaluation involved an analysis of volunteer activity, interviews with key stakeholders, and questionnaires to volunteers followed by a focus group with a small number of the respondents.

The researchers who had worked with the panel reported that the volunteers had helped with:

• developing successful bids for funding
• developing lay summaries
• reviewing patient information sheets
• managing research through membership of steering groups
• developing successful approaches to target possible study participants
• disseminating study findings to relevant sections of the community.

PPIRes was thought to have enhanced the R&D consortium's profile and made it more competitive in terms of getting funding.

The evaluation concluded that more work needs to be done to:

• raise the profile of PPIRes with the local research community to increase its use by researchers
• monitor the activity of volunteers and provide feedback on their impact to all involved 
• engage the agencies and communities that are currently under-represented in the panel membership.

External link: The following links will take you to information on this entry on an external website. INVOLVE is not responsible for the content or the reliability of the external websites. Link to abstract

Related entry: none currently available

Categories: health
public health
social care
Identifying topics, prioritising and commissioning
Designing research
Managing research
Writing up and disseminating
impact on funding/commissioning
impact on research
impact on service users involved
impact on researchers
impact of public involvement
journal article
Recruitment

Date Entered: 2010/09/28

Date Edited: 2012/11/20