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Title: The integration of citizens into a science/policy network in genetics: governance arrangements and asymmetry in expertise.
Author: Daudelin, G., Lehoux, P., Abelson, J. and Denis, J.
Date Published: 2010
Reference: Health Expectations 2011 Sep;14(3): 261-71
Are service users or carers authors: No/Not Known

Abstract:

This is a report of a case study where citizens were involved in a Canadian science/policy network in the field of genetics. It describes how, in spite of the network's best intentions, the role and the necessary skills and knowledge for this role, had not been well thought out. The citizens soon began to feel uncomfortable about their contributions and to feel used by the organisation. There are lessons for other scientific organisations in gaining clarity about the purpose of involvement and the processes for building capacity amongst involved citizens.

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Related entry: none currently available

Categories: research commissioners
description of involvement in a research project
strategic level decision making
members of the public
staff in research organisations

Date Entered: 2011/01/17

Date Edited: 2012/12/10

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