Evidence Library

Abstract:

This article describes how two patient researchers worked with academics on a project to develop a research agenda for social-science research in the area of chronic kidney disease (CKD). The patient researchers helped with carrying out interviews with patients with CKD and parents of children with CKD, conducting focus groups and observing people in a dialysis centre. They also helped to analyse and write up the data. The article describes the mutual learning that took place at all stages of the project. The researchers conclude that involving the patients in the team improved the quality of the findings because the patients ensured diversity amongst the people interviewed, carried out more in-depth interviews and brought more insights to the analysis of the data. This resulted in new perspectives on the social aspects of living with CKD, laying the groundwork for a research programme that will better meet patients' needs.

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Categories: health
public health
social care
Identifying topics, prioritising and commissioning
Designing research
Undertaking research
Analysing and interpreting
impact on research
impact on service users involved
impact on researchers
impact of public involvement
journal article

Date Entered: 2011/02/28

Date Edited: 2012/11/20