Evidence Library

Abstract:

This report summarises the findings from an evaluation of 45 studies selected at random from the Mental Health Research Network (MHRN) portfolio. The lead researchers from these studies were interviewed to find out how they had involved service users in their research and what difference this had made. The majority of researchers (40%) had involved service users on steering groups with variable success. In some cases the involvement had influenced key aspects of the study design and delivery, whereas in others the impact had been minimal. About 20% of the researchers had involved service users throughout their project, so that all aspects of the research had been influenced by the service user perspective. About 20% had involved service users at the design stage. Most often this led to changes in the practical arrangements for participants, but occasionally service users had influenced important aspects of the study design including the research question and choice of outcome measures.

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Categories: health
Designing research
Managing research
Undertaking research
Analysing and interpreting
Writing up and disseminating
impact on research
impact on service users involved
impact of public involvement
report
Recruitment

Date Entered: 2012/03/26

Date Edited: 2012/03/26