Putting it into Practice

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Title: To what extent can people with communication difficulties contribute to health research?
Author: Palmer, R. & Paterson, G.
Date Published: 2013
Reference: Nurse Researcher, 20 (3), 12-16
Are service users or carers authors: No/Not Known

Abstract: This paper presents a model of involvement for people with aphasia, a communication problem commonly experienced after a stroke. The researchers set up an advisory group for people with aphasia and their carers. The group was involved at every stage of a project to assess the cost-effectiveness of computer-based treatment for aphasia. The researchers describe the approaches they used to enable people with communication difficulties to contribute meaningfully to the research. These included careful preparation for structured meetings and the use of creative methods of exchanging ideas.

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Categories: journal article
service users and carers
researchers
lessons from direct experience of involvement
description of involvement in a research project
designing of research
recruitment
writing up and disseminating
training and supporting service users
staff in research organisations
people with communication difficulties

Date Entered: 2013/05/08

Date Edited: 2013/05/08

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