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Abstract: This article considers the role of lay members of Research Ethics Committees and describes how in practice this is very similar to that of patients who are actively involved in research. The author argues that patients with direct experience of the topic being investigated are best placed to advise on the ethical aspects of research design in a way that ensures the interests of potential participants are protected. A process of patient involvement prior to ethical review would be the most effective way to enable patients’ views to influence research. This has implications for the role of lay REC members and their recruitment.

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Categories: health
public health
social care
reflecting on public involvement in research
journal article

Date Entered: 2013/05/08

Date Edited: 2013/05/08