Evidence Library

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Title: Patient and service user engagement in research: a systematic review and synthesised framework
Author: Shippee, N., Garces, J., Lopez, G. et al.
Date Published: 2013
Reference: Health Expectations doi: 10.1111/hex.12090. [Epub ahead of print]
Are service users or carers authors: No/Not Known

Abstract: This article reports on the findings from a systematic review of the literature on patient and service user engagement in research. The authors have developed a two part framework. The first part describes four components of involvement: • patient and service user initiation • building reciprocal relationships • co-learning • re-assessment and feedback. The second part describes involvement during three phases of research: preparatory, execution and translational phases. The authors comment on the poor quality of the evidence and inconsistency in reporting on involvement.

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Categories: health
public health
social care
all
Identifying topics, prioritising and commissioning
Designing research
Managing research
Undertaking research
Analysing and interpreting
Writing up and disseminating
Evaluating
impact on funding/commissioning
impact on research
impact on research ethics
impact on service users involved
impact on researchers
impact on implementation and change
impact of public involvement
journal article
Recruitment
Implementation and change

Date Entered: 2013/10/28

Date Edited: 2013/10/28

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