Evidence Library
Title: Prioritisation of therapy uncertainties in Dystrophic Epidermolysis Bullosa: where should research direct to? An example of priority setting partnership in very rare disorders
Author: Davila-Seijo, P., Hernandez-Martin, A., Morcillo-Makow, E., de Lucas, R., Dominguez, E., Romero, N., Monros, E., Feito, M., Carretero, L., Aranegui, B. & Garcia-Doval, I.
Date Published: 2013
Reference: Orphanet Journal of Rare Diseases, 8, 61
Are service users or carers authors: Yes
Abstract: This article summarises the outcome of a priority setting partnership that followed the James Lind Alliance method, to identify research priorities for a very rare condition.
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Related entry: none currently available
Categories: health
Identifying topics, prioritising and commissioning
impact on funding/commissioning
impact of public involvement
journal article
Date Entered: 2013/10/29
Date Edited: 2013/10/29
Additional Info: