Evidence Library

Abstract: This article reports on the experiences of eight people affected by cancer who were involved in supportive and palliative care research over a period of six years. Their views were obtained by semi-structured interviews. The main benefits of involvement were reported as: • making a difference to the research • gaining personally from new knowledge, skills, increased confidence and personal support. The challenges included the emotional demands of the work that came from revisiting personal experiences, as well as the practical demands. These included demands on people’s time and researchers’ use of complex, technical language. The service users also stated that they would like a clearer understanding of the long-term impact of their involvement on the projects.

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Categories: health
public health
social care
Designing research
impact on research
impact on service users involved
impact of public involvement
journal article
Recruitment

Date Entered: 2014/08/19

Date Edited: 2014/08/19