Evidence Library

Abstract: This article reports on the experiences of a neuro typical researcher (someone who does not have Asperger’s syndrome) working on a research project with three adults with Asperger’s syndrome. The project aimed to find out what other adults with Asperger’s thought about the support available to them, and how it could improve their lives. The team described the researcher’s role as a ‘navigator’. The expertise she brought to the project was around the research process and working with groups. She used these skills to enable the group to carry out the research, without imposing her way of thinking. Based on the co-researchers’ reports of being involved, the project was thought to be empowering. This was because it created an environment in which the co-researchers could explore their identity and consider their experiences with each other. Throughout the project, the researcher also endeavoured to establish and maintain equality in the partnership. The co-researchers also reported that they gained confidence and skills through being involved. For these reasons, the researcher concludes that the project can be described as emancipatory, even though a non-disabled researcher was working alongside service users.

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Categories: health
social care
reflecting on public involvement in research
journal article

Date Entered: 2015/04/28

Date Edited: 2015/04/28