Evidence Library

Abstract: Aim: To explore the possibilities of carrying out a quantitative assessment of patient and public involvement (PPI) using existing Clinical Research Network (CRN) data sources. Methods: The researchers analysed responses from the CRN Closed Study Evaluation Survey, the CRN Recruitment to Time and Target (RTT) data and reviewed the researchers’ original plans for PPI as described on their R&D forms. Data was obtained for 281 studies. Findings/ recommendations: The most commonly reported involvement activities were: contributing to patient information and consent forms (40%), followed by involvement in protocol development (32%), and identifying ethical issues (30%). A statistical analysis showed a small relationship between involving patients and reaching the target for recruitment, but there was no correlation with recruiting to time. The researchers conclude that we need a better understanding of the variation in levels and type of involvement in different types and design of study to help us understand the effects of PPI at different stages of research.

Related entry: none currently available

Categories: health
public health
social care
Designing research
impact on research
impact on research ethics
impact of public involvement
report
Recruitment

Date Entered: 2015/04/28

Date Edited: 2015/04/28