Evidence Library

Abstract: Aim: To explore stroke survivors’ experience of involvement in research, and to find out how the consequences of a stroke affect the process. Method: Semi-structure interviews with eleven stroke survivors. Findings/ recommendations: The stroke survivors reported the personal benefits of involvement as: developing supportive relationships, giving something back, gaining confidence, feeling their opinion is valued and intellectual stimulation. They thought that they brought a different perspective to research based on their experiential knowledge, which improved the quality and relevance of the projects. They emphasised the importance of matching the stroke survivor’s symptoms with the research topic. Some stroke survivors reported drawing on their expertise in other parts of their life to enhance their credibility with researchers, in particular their experience of research and commissioning services. People who were recruited through interview to join a national or regional group of academics/ clinicians seemed more likely to draw on such professional expertise, than people recruited to a local, lay advisory group.

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Categories: health
public health
social care
Identifying topics, prioritising and commissioning
Designing research
impact on research
impact on service users involved
impact of public involvement
journal article

Date Entered: 2015/07/30

Date Edited: 2015/07/30