Evidence Library

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Title: Beyond tokenistic involvement of older people in research - a framework for future development and understanding.
Author: Dewar, B.J.
Date Published: 2005
Reference: International Journal of Older People Nursing in association with Journal of Clinical Nursing, 14(3a), 48-53.
Are service users or carers authors: No/Not Known

Abstract:

This paper reflects on intiatives that have been developed at the Royal Bank of Scotland Centre for the Older Person's Agenda that aim to support older people in partnership working in research and development work. It reports on the benefits of working in partnership with older people, the challenges for researchers and issues that need to be considered in the future.

Early evaluation of the impact of involving older people in research at the centre have shown:
  • better access to marginalised groups
  • more accessible information
  • better dissemination of information to peers
  • greater empathy with other older people in interviews.

One of the key issues raised is the role of user researchers. Should they play a research assistant role (that is the same as the researchers) or is there something about their role which is distinct? Should the training provided be any different to the training given to research students, that is an introduction to research methods? Or is specific training needed for user researchers?

Other issues raised include:
  • the need to be critical about why it is important to involve users in research
  • being clear about what involvement means
  • whether older people want to control research and whether research led by older people has better outcomes than partnerships
  • older people's motivation to get involved.

External link: The following links will take you to information on this entry on an external website. INVOLVE is not responsible for the content or the reliability of the external websites. Link to PubMed abstract

Related entry: none currently available

Categories: health
public health
social care
Designing research
Undertaking research
Writing up and disseminating
impact on research
impact on research ethics
impact of public involvement
reflecting on public involvement in research
journal article
Recruitment

Date Entered: 2007/02/20

Date Edited: 2012/11/20

Additional Info: